A powerful guest commentary by Michael Martignetti, suffering from Friedrich's ataxia, a horrible neuromuscular degenerative disease. Mr. Martignetti writes: "I co-founded the Ataxia Support Group in Boston in 2000, so I know the ravages of this disease, what awaits me at the end of my life, and it will not be pretty. Friedreich’s ataxia causes: 1) the spinal cord and peripheral nerves degenerate, 2) diabetes in some people, and 3) various forms [...]
A fascinating article about the profound ethical dilemmas associated with caring for people suffering from dementia, and in particular on the ethics of being truthful. By Larissa MacFarquhar in the New Yorker, October 8, 2018. The article describes how medical ethicist Maartje Schermer believes that "To reject happy delusion on principle seems to her too puritanical, too rigid. Besides, she believes, once a person with dementia has lost the capacity to tell [...]
The realities of dying of lung cancer, by Sarah Lyall, describing the horrors of her mother's final days, in the New York Times on August 31, 2018. "Gradually, the illness took hold, the inevitable became less abstract and the jokes stopped. Mom had vivid dreams of death so awful that she could not bring herself to describe them. She became too weak to leave her bed, more of her independence seeping out [...]
Some really big news. On April 5, 2018, Hawaii governor David Ige signed the "Our Care, Our Choice Act", making Hawaii the seventh state with medical aid in dying, joining California, Oregon, Washington, Colorado, Montana, and Vermont. The law goes into effect on January 1, 2019. It was a long time coming. The first aid in dying bill was introduced in Hawaii in 1998. But this long process resulted in a tremendous depth of knowledge and support for [...]
It's not going anywhere in Ohio's very conservative legislature, but it's an important milestone nevertheless: an Oregon-style aid in dying bill has been introduced by courageous state senator Charleta B. Tavares, a Democrat representing the Columbus area. Aid in dying in Ohio is being promoted by our sister organization Ohio End of Life Options, led by Lisa Vigil Schattinger, a nurse, and the daughter of Oregon physician Dr. Jack Rowe, who, dying [...]
"Powerful, profound, moving and vitally important" are just a few of the words that are descriptive of this incredible eight-minute video by Final Options Illinois member Amanda Breeden, about her grandfather Grant McGuire, who took advantage of Oregon's aid in dying law to escape an agonizing end from pancreatic cancer. Don't miss! Click here to watch it on FOI's YouTube channel, and click here to read the full text.