A powerful guest commentary by Michael Martignetti, suffering from Friedrich's ataxia, a horrible neuromuscular degenerative disease. Mr. Martignetti writes: "I co-founded the Ataxia Support Group in Boston in 2000, so I know the ravages of this disease, what awaits me at the end of my life, and it will not be pretty. Friedreich’s ataxia causes: [...]
A fascinating article about the profound ethical dilemmas associated with caring for people suffering from dementia, and in particular on the ethics of being truthful. By Larissa MacFarquhar in the New Yorker, October 8, 2018. The article describes how medical ethicist Maartje Schermer believes that "To reject happy delusion on principle seems to her too [...]
The realities of dying of lung cancer, by Sarah Lyall, describing the horrors of her mother's final days, in the New York Times on August 31, 2018. "Gradually, the illness took hold, the inevitable became less abstract and the jokes stopped. Mom had vivid dreams of death so awful that she could not bring herself [...]
A fascinating blog post by medical ethicist and philosopher Jerry Dworkin, published June 1, 2015, at the height of of the campaign to pass California's aid in dying law. Mr. Dworkin, a Chicagoan, is the author of the 1998 book "Euthanasia and Physician-Assisted Suicide." Here's the link...
"The Sick Among Us Are Not Burdens To Be Tossed Aside" is the headline on Final Options Illinois 2018 newsletter, making the case that aid in dying does not exist in a vacuum, that health care must become a human right so that everybody can have access to the full spectrum of end of life [...]
Here's an important, informative and fascinating new book, "Advice for Future Corpses (And Those Who Love Them): A Practical Perspective on Death and Dying", by Sallie Tisdale Read all about it at the New York Times on June 27, 2018
Heaven help us, folks, this is serious. There have been breakdowns in the production system for many essential drugs especially morphine. The one thing we can't do without as we're dying. This is an important story in the July 1, 2018 New York Times...
"Ain't The Way To Die", a great three-minute music video by Doctor Zubin Damania, also known as ZDogg MD. A take-off on the song, "Love The Way You Lie" by Rihanna and Eminem, this is both musically catchy and very profound. It's a heartfelt denunciation of the barbarism of unwanted and futile medical care at [...]
Our May 2018 newsletter, with news about the wonderful new aid in dying law just passed in Hawaii, and the great news that the Washington D.C. law remains in force. Includes fascinating quotes and details about victory in Hawaii, including an interview with John Radcliffe, prominent citizen of Hawaii and chief lobbyist for the bill. [...]
Some really big news. On April 5, 2018, Hawaii governor David Ige signed the "Our Care, Our Choice Act", making Hawaii the seventh state with medical aid in dying, joining California, Oregon, Washington, Colorado, Montana, and Vermont. The law goes into effect on January 1, 2019. It was a long time coming. The first aid in dying bill was introduced [...]